Precious C. Scott-Fields’ 25th birthday fuels a national campaign on Down syndrome awareness, life expectancy, and quality care for medically complex families.

After a string of denials for rare disease treatments, the FDA greenlit a drug for Hunter syndrome, a progressive illness ...

After a string of denials for rare disease treatments, the FDA greenlit a drug for Hunter syndrome, a progressive illness ...

Experts explore the 2022 AAP Down syndrome health supervision guidelines and the SPIKES strategy for delivering compassionate, family-centered diagnoses.

Everybody has a story. Had it not been for his great-niece, we couldn’t have shared the one about Jimmy Rasel in last Sunday’s newspaper. The 79-year-old Lone Pine man was beloved to all who met him, ...

Explore the theme and global impact of World Down Syndrome Day 2026. Discover how inclusive advocacy is reshaping rights and ...

Feeling proud of your choice to live in San Diego County? You should – it might mean you live a little longer. County residents are living to the age of 81.5 years, according to data released Thursday ...

Waukesha mom Elise Niess-Uribe uses Instagram to document life with her 8-month-old son, Ollie, who has Down syndrome. Inspired by her own prenatal diagnosis, Niess-Uribe offers a resource for parents ...

WAUKESHA, Wis. - When you think of a social media influencer, you probably think of 'get ready with me' videos, Amazon dupes, and travel reels. But one Waukesha mom is using Instagram to share with ...

Carissa Carroll started the nonprofit Jack's Basket in 2014. Since then, they've delivered thousands of care packages—and created a community of support for families around the world Andrew Vick; ...

In 2023, the city of Boston sounded the alarm over a stark 23-year life expectancy gap between people who live in Roxbury compared to those in Back Bay. A broader examination of the issue now shows a ...